KEYNOTE. THE DIGITAL DATA DIVIDE: USING SPECULATIVE FICTION TO FACILITATEPUBLIC DIALOGUE ON THE INCREASED USE OF PERSONAL DATA

Authors

  • SWM Groeneveld Research Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, Enschede, Netherlands; 2TechMed Center, Health Technology Implementation, University of Twente, Enschede, Netherlands (NL)
  • H van Os-Medendorp Faculty Health, Sports, and Social Work, Inholland University of Applied Sciences, Amsterdam, Netherlands; 4Spaarne Gasthuis Academy, Haarlem, Netherlands (NL)
  • JEWC van Gemert-Pijnen5 Centre for eHealth and Wellbeing Research, Section of Psychology, Health and Technology, University of Twente, Enschede, Netherlands (NL)
  • RM Verdaasdonk TechMed Center, Health Technology Implementation, University of Twente, Enschede, Netherlands (NL)
  • MEM den Ouden Research Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, Enschede, Netherlands;6Research Group Care and Technology, Regional Community College of Twente, Hengelo, Netherlands (NL)

DOI:

https://doi.org/10.35363/ViA.sts.2025.109

Keywords:

data, AI, society, technology, speculative fiction, festivals

Abstract

In today's interconnected world, personal data generation and collection are growing exponentially. Increasingly, data from multiple sources, ranging from vital signs to environmental and lifestyle information, are combined to create detailed personal profiles (Brunning et al., 2023). While this enables more personalized care, it also raises questions about privacy, data reliability, ownership, and the desirability of collecting such data.

To foster dialogue on these issues with a broad audience in an engaging and accessible way, the festival experience The Digital Data Divide (www.thedigitaldatadivide.nl) was developed (Groeneveld et al., 2024). This interactive experience draws on the concept of narrative learning, an approach that uses stories and dialogue to help individuals interpret and understand the world around them (Elsden et al., 2017). When applied as speculative fiction, narrative learning is especially effective for exploring potential future scenarios. By embedding these scenarios within a story, it encourages participants to critically examine and question their present viewpoints (Haste and Abrahams, 2008). The Digital Data Divide premiered at the Zwarte Cross Festival in the Netherlands in 2023 and has since been featured at various festivals, events, congresses, as well as in educational and healthcare settings and won the E³UDRES² Innovative Science Outreach Award in May 2025.

References

Bunning, B., Hedlin, H., Chen, J., Ciolino, J. D., Ferstad, J. O., Fox, E. J., … & Desai, M. (2023). The evolving role of data & safety monitoring boards for real-world.

Elsden, C., Chatting, D., Durrant, A.C., Garbett, A., Nissen, B., Vines, J., et al. (2017). On speculative enactments. Proceedings of the 2017 CHI conference on human factors in computing systems, 5386-5399.

Groeneveld, S., Koster-Brouwer, M., Talsma, M., Laurijssen, S., van Os-Medendorp, H., & den Ouden, M. (2024). The Digital Data Divide. Onderwijs & Gezondheidszorg.

Haste, H., & Abrahams, S. (2008). Morality, culture and the dialogic self: Taking cultural pluralism seriously. Journal of moral education, 37, 377-394.

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Published

04.11.2025

How to Cite

Groeneveld, S., van Os-Medendorp, H., van Gemert-Pijnen5, J., Verdaasdonk, R., & den Ouden, M. (2025). KEYNOTE. THE DIGITAL DATA DIVIDE: USING SPECULATIVE FICTION TO FACILITATEPUBLIC DIALOGUE ON THE INCREASED USE OF PERSONAL DATA. SOCIETY. TECHNOLOGY. SOLUTIONS. Proceedings of the International Scientific Conference, 3, 6-7. https://doi.org/10.35363/ViA.sts.2025.109